Haley’s Giggle

Hi everyone! This is Haley. I haven’t written in a very long time. I can tell you that I am so excited for March 15th. One year exactly from my transplant. One year exactly, and I will be declared CAMT free! Of course, I will still be on my nauseating medicine (which Anna now likes to “help” out with). But this means two things:

1) I have as much chance of developing leukemia or aplastic anemia as the next kid, and

2) I have a fully functioning immune system!

The countdown is three weeks. I hope you all are counting with me.

And I hope this lets my parents finally breathe.

I hope I will be able to take a vacation!  My big sister Anna got back from Disney World, having the time of her life. That was her present after such a tough year. I wonder where I will be going. I’ve asked Mom and Dad for a trip to the final four. Not sure they’ll take me there, but if you all recall, that’s what really pulled me through the daily struggle of the transplant.

I’m thinking about getting a dog. Two maybe. Let the allergens fall where they may– I can take it now! I’ve been practicing “nice” to my stuffed animals, and pippie of course. I’m ready for the real deal.

I’m slowly going to out to other kids’ places, and I’m meeting new friends. This is all so much fun for me! I am also constantly being entertained by Anna, and the new songs my mom teaches me. One of which is the “Rehab” song — my part is “no! no! no!” I can’t sing like Anna yet, but I love being so defiant!

My bloodcounts are all normal (ven my red blood cells, which for the longest time were on the low end), and they’ve just said I’m not going to have to get my blood checked anymore, which means no weekly needle stick!

Next week is also my last anti-pneumonia infusion. I only needed it for the year. I hope this means I can get out my mediport, where they insert that ridiculous nail/needle thing. It’s always at risk for infection, so the sooner it comes out the better.  

My skin looks good some days, bad others. Today is a bad day, but i get doused with fluocininide, hydrocortisone, plus lots of lotion-y massages from Mom, and that seems to help.

Problem still is eating. I still would rather not, but I have to start– I haven’t gained weight in two weeks! Luckily, I have a Mom and a nanny who love to cook, and come up with things i might like. Last night, I even had some fish sticks! If I don’t eat soon, and gain weight soon, there will be talk of a GI tube! I’m going to fight like I have been, with every giggly wiggly part of me, and I’m going to gain weight!

OK… start counting y’all! These are exciting times!

Oh, and if you haven’t written anything yet to me, please do. Mom is about to put it all in a book so that when I get older, I can see all of the people who loved and cared about me.