September 1, 2009: Haley Goes to School
There aren’t many sights as delightful as a child giddy at the mere thought of something. That was Haley, so excited for her first day of school. She came fully-equipped: thermos of hot matzo ball soup, cashews, soy-free snacks, almond milk, and tonsand tons of diapers. the new schedule is school,then physical therapy with the fabulous Jaye. Her day starts and ends with a few spoonfuls of peanut butter, and, too give her even more energy, at the ened of the day so she can’t burn it off, a blast of probiotic smoothie (through the feeding tube, god forbid she should actually want to put it into her mouth). So far, her favorite thing seems to be playing a pink plastic ruler and singing into the mirror. The worst part of her day is about an hour into the morning when she realizes she’s not going home any time soon.
Given the fact that she has never been in any type of class or group play environment for more than a half hour, she’s doing extremely well. Her school so far is being very supportive, and willing to adapt to Haley’s needs. We will be retesting her allergies, as well as testing her smell capabilities, and, now that we have found an orthopedist, will be going to her soon as well. Haley wears orthotics now, and that seems to be a doing a great deal of good, so hopefully there will be no procedures in Haley’s future. Hooray for this amazing girl, who made it to a small but very important step!
As always please let us know if you need anything!
OMG so adorable!
September 8th, 2009 | #
That is the cutest school outfit I’ve ever seen. It matches her ruler.
September 8th, 2009 | #
Hooray Haley!!! She is so brave, and will have the best time in school, because… well… that’s who she is! How can you not be brave enough to take such big steps when you begin and end the day with a spoonful of peanut butter, and a plaid mini skirt?
September 8th, 2009 | #
In the worlds of compromises we can live with and compromises we can’t, if she wants to probiotically shake herself through high school graduation, that’s A-OK. Three cheers for Wonder-Haley!
September 8th, 2009 | #
Here comes A 1 special girl. Watch out world she’s on the move and there is NO stopping her now.
September 10th, 2009 | #
Hi Haley, it’s awesome to see you going to school. So proud of you! What wonderful news to see you start school. Love Dan, Kirsty, Joshua and Cait ( NZ)
October 8th, 2009 | #