Haley’s Giggle

June 13, 2008: We are experiencing delays

June 13th, 2008

Perhaps just coincidence, but the exact moment Haley was supposed to get prepped for her colonoscpy/endoscopy, she suddenly developed a one-time fever. Her rescheduled procedure is sadly on her birthday (june 26th), but if it’s going to help explain why she still isn’t eating much, then it will be a happy day.

To prep Haley for this procedure, which includes a biopsy, she had to fast since midenight the night before. And for a kid who barely eats, that’s an eternity.  So no fun for her, even before they do anything invasive.

We’ll of course keep you all posted.

She’s as happy and wonderful as can be, and aside from the walking and eating, is developing quite quickly. She’s very knowledgeable about her shapes, especially heart balloons, which are her mother’s specialty. Like most younger siblings, she has taken up some of Anna’s likes, such as Barbies (good lord). And because she has advanced fine motor skills, loves to draw (and I don’t have to worry about her eating the crayons, since she still won’t put anything in her mouth), and loves anything with buttons. She’s oh so much more than these things, and it’s hard to describe her bubbly personality without experiencing it first hand. But the worry was always cognitive or social issues, and perhaps they will manifest later in life, but so far there is nothing we see as cognitively delayed in anyway. Quite the opposite, in fact. It’s not every almost two-year old that knows how to access my cellphone messages. :)

 A quick shout out to Dave who left the hospital and doing wonderfully. We’re all still thinking of you. And to Josh in NZ– keep up the great work!

1 Comment »

  1. Leslie Bowers says

    I found your website while searching CAMT on Google. I was amazed to find another little girl who had this disease since it is so rare. My daughter also had CAMT. She will be 3 years post-transplant in September 2008. It’s so hard to believe it’s been that long. I would love to compare stories sometime. Our website is http://www.caringbridge.com/visit/erinbowers.

    Glad your daughter is doing so good.

    June 24th, 2008 | #

Leave a comment

:mrgreen: :neutral: :twisted: :shock: :smile: :???: :cool: :evil: :grin: :oops: :razz: :roll: :wink: :cry: :eek: :lol: :mad: :sad:

RSS feed for these comments. | TrackBack URI

Latest Photos

Haley's Photos

transfusion day dr. haley in school haley hearts school some of haley's classmates anna and haley walk home from the hospital Haley's first stroll out of the hospital haley at play Day44, Sister's Reunion haley hearts remotes day 44, sisters reunion part 2 mommy, human jungle gym. high chairs are for eating first day home happy hannukah! aunt bea fall of 08 sept 17 2008 friends and basketball first day home, part two haley 07 brain probe modeling electrode model something's not right first signs of white blood cells! atg day exersaucer dance therapy music therapy haley in mayorga Haley, fall 09 haley, camt
View more photos >

Recent Posts

Webdevelopment byPajamadeen.com