July 23, 2008: Feeding Tube Likely
After a lengthy visit with her bone marrow transplant doctors, it is most likely the scenario that Haley will need a feeding tube. She is not even charting for height and weight anymore, and her eating situation hasn’t improved at all. She will also be seeing an allergist as soon as possible, and her physical therapy to get her walking on her own will be increased to at least 3 days a week for the next forseeable future.
While this was always a possbility, it’s still not quite sinking in. After all this beautiful girl has gone through, there is yet another hurdle in her way.
I have a lot of research to do.
Speaking of research, and interesting tidbit I’ve never mentioned: the TOTAL number of documented CAMT cases in the US is 24. We just met the latest case.
More later. Sleep is paramount right now, for everyone.
Oh, Haley visited her good friend Dave up in New York who also underwent a bone marrow transplant. And we both think he is doing a phenomenal job.
