Haley’s Giggle

Bacon has been dispensed liberally in the matzoball soup. Peanut butter has been introduced slowly. The effects, particularly any long term ones,  are still too soon to tell, but signs point to a positive association with food. At least some of time, anyway.  We go up to New York soon for a full blown checkup and CT scan, so we can get an accuate read of where she’s at.  The rest — her rashes, general eating habits, and walking remain the same.

On the walking front, our lovely PT just informed us that she can no longer do “home” visits. The company is trying to replace the PT, but we may have to go to Children’s for a while. Not that the PT department isn’t top notch, it’s just that it’s one of the only parts of Haley’s rehabilitation that she doesn’t have to do in a hospital setting. 

The two-year mark of Haley’s transplant approaches, as does the time when Haley can meet her life saver. I’ve pictured the person over and over in my mind, man or woman, teenager or retiree, sportsperson or litarary lover. The only thing known is that the person is from Europe, so a trip across the pond will likely be in haley’s near future, providing good bacon matzoball soup.